Index – Culture – What about someone who dies after living?


Alzheimer’s is a disease that takes away from us who we are. This perfectly, degrading the body and the soul gradually, deprives us of our memories so that at first we are just aware of our illness, our feasibility, our transitive and perhaps the worst; We see and see that our environment suffers too. Until there was nothing left but one body that once meant us.

This is the disease that can go to a tree to bind itself, and then forget about our original purpose, standing empty in the middle of the garden with a rope in our hands.

Dementia is not a disease but a condition that can be triggered by many things: an accident, alcohol poisoning, diabetes, stroke, but today the vast majority of dementia patients suffer from Alzheimer’s disease.

There are no accurate statistics at home, but compared the data with foreign cases, researchers say that the number of Alzheimer’s patients has doubled in the last fifteen years, and by 2050, it is estimated that one in three will be over 65 years old .

And these are serious numbers, especially when we look at the fact that the disease can not only affect one person. It can ruin families.

In addition to all this, the problem is not handled according to its weight and is far from as much attention as it should be.

However, it is worth and should be talked about

Over the last few years, more and more theaters have been working on this topic and the problems. The fall premiere of The Pest Theater, The Father, for example, shows from the perspective of a demented person how nerve-wracking, scary and frustrating it feels like we are losing our own reality. In this piece by Zeller, András Kern played André, through him we could see in this state. From the whimsical leave to the point, while the character, imagining himself as a child again, speaks to his long-dead mother on a hospital bed.

We hear little about this disease, many of us have not even encountered with a dementia patient, but in general, anyone who has seen up close how someone will be a shadow of themselves understand the scale of the problem. Although the Western world taboo is dead, everyone is aware of its existence, but it understands its operation.

Some people are still sitting with us one day and there are no more

  • What about those who die in their lives, even more than once?
  • What if someone we know and love well becomes a stranger before our eyes?

Ildika Gal directs a two act game featuring Robert Coltai and Blas shirts To Batang With this title. Christian Gundlach is the author of the play, originally a musician-conductor whose demented grandfather’s life provided the inspiration for the writing.

In the story, a man tells his nurse about the past of his sailor, which later turns out not to exist. The director wanted to show how this terrible illness could still give faith and teach a person to dream of dreaming in parallel with the loss of reality, built on an emotional memory that strangely remains over. In addition to the tragedy, he smuggled poetry into the drama while preserving a fundamentally positive outlook on life.

The creators also invited specialists and doctors to the performances, so they can be sure that they faithfully depicted the disease and the process of mental decline.

In this regard, they were asked to make a sensitizing short film of one and a half minute spots with the most common symptoms of dementia in old age.

We wanted to introduce the natural oddities that people, relatives, do not know much about what to do. During the slaughter, it turned out that we managed to collect the episodes in such an order that the arch and the course of the disease can be shown in it. These are human stories that are told to us by acquaintances. My personal involvement is too strong for me: my mother struggled with vascular (cardiovascular) dementia. This is a different disease but symptoms similar to Alzheimer’s. We have long sought the location of the film, and finally my son, Balázs Mucsi, who is also the visual designer of the theater play, remembers my mother’s apartment, and it was a hit. On the one hand, I thought it was a tribute, and on the other hand, it made us feel at home. Two-thirds of the short film is there

Says director Ildiko Gaal.

A documentary that stirred a lot of dust

Between the production of the Pest Theater and Gaál-Koltai, you can find two strong connections.

  • One is the insistence on showing good mood. As if humor is really an essential accessory for processing that is seen.
  • The other is that both the videos show the symptoms and The father In connection with the crew, he met with the documentary István Kollár, Alzheimer’sRel

Kollár, a Győr journalist, met Mária during a job that had taken care of her sick husband at home for many years. During several conversations, it was clear to Collar that the topic needed more attention.

The one-hour distribution document was made in five years, and he only found one sponsor afterwards. He himself filmed, cut and edited.

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When I became aware of how much the disease is not mentioned in public life, I dug myself better. I noticed that people were left very alone. This applies not only to the patient, but also to his environment. Also for someone who stays at home to feed. She does not have much help with care, physically or financially. The problem is here. I think it affects everyone socially and should be shown in films through performances. And this is just the first step in a long mission

– says Collar, who also said that the arrival of the film stirred a lot of dust in the medical, professional, dementia environment. Many are glad that someone has finally talked about the topic translated into common language.

  • But there were also those who would have had the task of treating the problem, but did not, and after the film had placed the phenomenon in the spotlight, they were forced to do so.

István Kollár filmed for three years and stopped when his mother was also diagnosed with Alzheimer’s.

When he was involved in this way, a lot of conversations he had still more matured in him. It also became a personal matter to finish the film. Even so, he found no supporters for him.

On his skin, he experienced a complete lack of help, ignorance of the environment about the disease. When her mother started producing symptoms, she called Mary. So, for the first time, no doctor diagnosed her mother’s illness, only Mary had already experienced the same things through her husband. Collar puts it this way:

How good it would be if everyone had a Mary of their own to call.

The idea gave him momentum and perseverance to continue. During the filming, he met dr. Miklós Menyhárt, the dreamer of the first Hungarian Alzheimer’s café, who worked for years in a special Alzheimer’s center in France. Along the way, he gained insight into a completely different world and perception:

Perhaps the covid situation illustrates how quickly, from anywhere, our lives can change. Alzheimer’s is like that, with the difference that it is for a lifetime. And although a new type of coronavirus is expected to be vaccinated, it is important to understand that Alzheimer’s is currently an incurable disease, but we do not even know the cause of it.

Says Dr. Menihart, who thinks the more we hear about Alzheimer’s, the more he gets into the public consciousness, the closer we come to the solution.

Mystical disease

Alzheimer’s disease develops as a result of degenerative lesions. An aminooid, a proteinaceous substance, is deposited in a key region of the brain, during which the cell breaks down through chemical processes. One consequence of this is memory loss.

Menyhárt said it would be very important to differentiate dimensionally, but at home this may not really work. Many times, diagnoses are not preceded by a thorough examination, and although this may not make such a big difference for the patient, it would be important for the examination and even the initial treatment.

In addition, GPIs have a greater responsibility, because they often have to recognize the signs first. In addition, physician-patient communication needs to be improved. Neither patients nor their relatives are helped if someone asks them every few months, “How are we, how are we?”

And opportunities, help, and experiences are usually communicated to relatives and stakeholders through civilian, grassroots communities, with noble simplicity because they are already better educated on the topic.

I once wandered the streets of Paris and then looked at the books at a vendor. Among the English – beginners, beginners for beginners, beginners, I also found a guide for Alzheimer’s beginners by accident. This would also not hurt

– says Dr. Miklos Menihart, who will visit the country with István Kollár, if the virus situation will not force people to stay at home. The two dedicated people came from different areas, but serve one purpose.

Wherever they order the film, they go and have a conversation after the screening. According to Collar, the conversation adds to the message of the film. It is necessary in the end for people to talk about what they have seen, to be able to say the questions expressed in them.

Because we really need to talk about this disease. Unless otherwise stated, they start as Miklós Menyhárt says:

No problem as long as you remember that you forgot something.

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