This time last month, 15-year-old Jordin Walker is the editor and photographer of her high school newspaper, the seasonal manager of the school baseball team, and a competitive archer. Athletic, outgoing and multilingual, the Missouri teen has everything for her.
But her life changed on December 12, when she was rushed to a Kansas City hospital for severe abdominal pain and uncontrolled bleeding.
Before the night was over, the teenager lost her vision and nearly lost her life to a mysterious illness – one that previously caused her to bleed from her mouth, nose and ears. Worse still, the disease can respond to any time.
"All doctors say it's against – they never saw it like this," her father, putty walker, told high tears. "So, the path right now is very uncertain."
Still lost her vision, Jordyn Walker had to relearn everything you previously denied on her vision.
"I saw my whole life seeing and suddenly I had to adapt very quickly to be in constant darkness," she said. "I have to find my way around [without sight] And they relate to doing things like eating and getting dressed. "
Her father suspects everything happened to you is somehow related to bowel and stomach issues. His daughter has dealt with most of her life. Over the years, she has seen a number of specialists, but the cause has never been pinpointed. The symptoms, he said, would typically have settled after a round of strong antibiotics.
The first thing to say was that you might have been more serious about having a family travel in July 2017 during a voyage during the voyage, when she was ill. Her teeth hurt, her stomach shoes, and she had bloody stools. She loses her sense of taste and smell.
When she is back on shore, the doctors ranks a number of tests and finishes off for a sinus infection. There were a number of medical tests in Missouri, but no answers were found yet. She eventually regained her lost senses.
Jordyn Walker is back to enjoy life. Everything is fine until the first week of December.
"Her mucus glands became so alert that she started bleeding out her eyes, ears, and nose," said putty walker. "She was rushed to an emergency room and was listening to people talking about how she was bleeding out."
Doctors stabilize you with blood caps, her father said. More than a week, she was released into an intensive care unit.
Jordyn Walker was admitted to the hospital again on December 12 – a day her family will always remember.
"Her nose is running, her teeth hurt, her face is flowing, and her eyes are beginning to kill," said Kit Walker. "My ex-wife pleaded with nurses to treat Jordan with [a steroid]But they were successful in listening to a hysterical mom and giving Jordan an epinephrine injection. "
According to her father, the teens were so swollen that her eyeballs were pushed from her head, and her doctors were forced to cut her eyelids in an attempt to relieve the pressure. She then underwent surgery to remove orbital bones to allow her skull to flex and drain.
The photographs below show Jordyn Walker at various points in the progression of her disease and in the hospital, and they may be upgrading to some readers.
While the surgery probably saved her life, she could save her vision. When she awoke, she was in complete darkness.
"The Surgeon, optometrist, and pediatrician all said the optic nerve was damaged beyond medical science's ability to fix it," Kit walker said.
Five Days Before Christmas, Jordyn Walker has facial reconstructive surgery to replace orbital bones around her eyes.
Dr. Travis Langner, the department head of pediatric critical care at the University of Kansas Medical Center, is familiar with this and said it was idle with some sort of auto-home disease.
"This presentation is definitely unique," Langner told Kansas City City CMBC television this week.
Kit Walker told Huffpost The road doctors explained to him that she had an "incredible battle going on" inside her body.
"Usually that battle fights between good cells and bad cells, but they think good cells are fighting good cells because they can't tell the difference," he said. "They have no idea why."
The case visited local media attention, but not all of it was accurate, said her stepfather, Shannon Loader.
"Some of the media is [reporting] She came back from travel and was oddly ill, "Loerzel told HuffPost." Wide testing has been done, and we do not believe – do not believe the doctors – the crew has something to do with the symptoms she has. "
According to Kit Walker, Doctors in Kansas City recently referred his daughter to the Mayo Clinic in Minnesota. She was admitted there on January 16 for another round of invasive testing.
Despite everything she does, Jordyn Walker does not have a wild injury or solicitation. She said she had a strong family support system and was able to open mind about the blindness prognosis.
"Science is always developed and new things come out all the time," she said. "So you never know. Or way, I'm not going to sit around and we have it."
The teenager, who was selected in everything in stride, said she had some advice that she wanted to share with anyone who had read her story.
"Appreciate what is around you," she said. "Nobody really takes it seriously until you get it. Recognize what you have and be thankful for it."
Family members have set up a GoFundMe page to help cover growing expenses. They also created a Facebook page to share updates on their condition.
"My daughter is a fighter," Kit walker says. "She is the toughest man I've ever met on the planet. There is still a goal for her and she will find it."
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