Mom's own skull is crushing her spine to reveal just two weeks left



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A single mother struggling with a rare condition means her spine is crushed by her own skull just two weeks ago to fund a life-saving operation in the US.

Samantha Smith, of Greater Manchester, suffers from Ehler Danlos syndrome, which weakens the body's connective tissues causing pain, dislocations, and cardiac abnormalities.

The 32-year-old has risen almost £ 180,000 from the £ 250,000 needed to pay for the procedure and set up a remnant of GoFundme campaign.

The surgery is not available on the NHS.

The mother-of-two had a final-ditch operation scheduled at an Arizona hospital for January 25th.

She said if she didn't raise the money she would "lose my chance to survive".

Samantha Smith with her children Jensen and Brooke

Fed up on her GoFundMe page over Christmas, she said: "I now have money for my own life and for my babies to have the mummies so desperately need and deserve.

"I am in constant pain in my throat, head and spine and week in, week out my neurological damage is becoming harder to ignore."

Samantha also told her children, Jensen, 10, and Brooke, eight, were wondering if this was their last Christmas together.

On January 3, the first psychotherapist posted on her fundraising campaign page savesamantha.

Samantha set up a page to raise funds

She said: "It's been the last hour. Surgery has been a real fix for my surgeon in Arizona.

"We're really on the last haul now.

"A stable life and health is finally within reach – but the peak of the mountain will be the hardest yet for us to get. I'm so tired."

Samantha is due to have surgery within two weeks

An X-ray of her spine

Samantha was diagnosed with Ellers Danlos syndrome (ADS-type 1) in January 2017 when Neurosurgeons discovered the weight of the skull, causing her spine to collapse due to tissue weakness.

Samantha was later diagnosed with cranoservic instability (CD), a secondary disease with EDS, which means the ligaments in her throat are also weakened to support her head.

Samantha Smith had two unsuccessful surgeries last year

Her first surgery was unsuccessful

Soon, Samantha became reliant and unable to be upright without agonizing pain and memory loss. She was at risk of internal decomposition.

In September, she had two operations in Washington aimed at stabilizing the virus in her throat, but she didn't go to plan.

She said the idea of ​​returning to the UK and telling one's surgery was not successful "she broke."

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