The biopsies and blood tests ended, and rare blood migration of Zainab Mughal's explanations, her parents came to grips with the sudden complication of their daughter's cancer fight. In order to survive the two-year old, it would take something that they have absolutely no control over: the kindness of strangers.
Zainab, which dwells in Florida in the US. It was diagnosed in October with a neuroblastoma, an aggressive cancer that usually occurs in children. Doctors said that the tumor has grown within Zainab's belly for almost half of her life. Fighting it would require two bone marrow transplants and a series of transfusions to replenish its blood supply as chemotherapy shrinks the tumor to nothing, doctors said.
"The results come and the results are really bad," her father, Raehel Mughal, said in a video. "We were all scared, this was the worst thing we were expecting."
There was another big complication: Mughal and his wife were tested to see if they were compatible blood donors. They are not. A parade of family and friends came to the hospital to be pressed by needles. No luck.
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"And this is when there was more of an alert," said Mughal.
Now, the two-year-old is in the center of a worldwide search to find donors with the same very rare blood that can help you, a battle dependent on the statistics and the benefits that your parents have all become acquainted with.
The people most likely to have suitable blood are Pakistani, Indian or Iranian descent, according to Onblood, the non-profit blood center that is leading the search. But even in the populations, less than 4 per cent of people have blood that zainab's body will not reject.
Most people never have to maintain the frequently-hidden world of rare blood transfusion.
There are some 360 different antigens on the surface of red blood cells, but most people's bodies will not negatively respond to the markers, has Frieda Bright, Onblood's reference lab manager. For the majority of people, getting the blood type right is all that matter.
But a small percentage of people – including Zainab – produce antibodies in the presence or absence of certain antigens, promoting the body to reject the blood. But the people still get into the accident or come down with diseases like everyone else, so there is a network of blood centers that specialize in rare blood, keeping a database of cluster combinations of antibodies and drainage it across the country to patients in need .
That's a great part of extensive work. It is part of a team that works around the clock, 365 days a year, to identify and catalog units of rare blood and, whenever possible, fulfilling requests. After Zainab's case is so rare that bright – that worked in the industry for 20 years – to go to a textbook to learn more about it.
Now OneBlood is working with the American Ryore Donor Program, an organization that connects donors with poor patients around the world. For Zainab, three compatible donors have been found – one in London, the other two are in the United States.
That's a promising sign, but it's not enough. Rules how often donors can give blood. Zainab's doctors would have to line up as many as 10 donors to ensure that when Zainab needs a blood transfusion, it can get it.
It is the missing piece of a treatment plan that doctors say is sharpening Zainab's tumor.
More than 1,000 people from Iran, Indian or Pakistani descent have promised blood in an attempt to see if they are compatible with Zainaab.
But her parents and a team of experts realize it's not over until Zainab goes out of the hospital, cancer free. So they launched an awareness campaign using the best weapons they had: zainab's story, and a endless stream of expensive times – tiny photos. One shows the toddler wearing a birthday cap and a polka-just pink dress, another shows her posing for a photo with a cream-colored dress and flowers and ribbons in her hair. A third, post-diagnosis, shows huge brown eyes below a hip head.
She is still too young to fully grasp the gravity of what she needs or the overwhelming lines attached to her. But her father hopes to one day explain her as a group of people that they do not know how to save her life.
"It is a humble request, and I ask it from my heart," Mughal said in a video produced by OneBlood. "My daughter lives very much depends on the blood.
"What you are doing to save a human life, to save my daughter's life, it's amazing. Once my daughter grow, I'm going to remind you that the effort was made for you to save Your life. "