They are on the supply of medication to treat patients with spinal muscular atrophy.



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Patients more than double Spinal Muscular Atrophy (AME) of Argentina may have access to a treatment that increases their outlook and quality of life, through an intervention signed by the Ministry of Health and Social Development of the national and private laboratory, the sole producer of the drug nusinersen (Spinraza)

The ame is a Disease of genetic origin, rare, of severe and ever-fatal rate In some of its forms. In Argentina, approximately 260 patients with SMA, Mostly boys, while it is estimated that there are 31 new cases per year. The coverage will be for patients with type I, type II and type who require treatment and are available.

Of the National Health Assurance Portfolio, in relation to the agreement that "In recent months, we have been working on the coverage of this new drug and to improve the access of patients to treatment, so this benefits Distributed directly and does not depend on the socio-economic condition, The place of residence or the type of health coverage ".

They also appear that although the coverage of this medication cannot be left behind in patients with diseases Very rare but very serious, Especially if they affect children, when life-saving treatments have been discovered. "

Ministry of Representatives stressed that they are responsible for providing the benefit to patients with SMEs. Will be the social work and the drug companies are preparing.

What is Spinal Muscular Atrophy?

Characterized by the aggressive and progressive loss of muscle strength, this pathology Voluntary muscular weakness and atrophy In charge of basic functions such as crawling, walking, controlling the neck, eating and something as simple and essential as breathing.

As shown by specialists and associations of patients ComfortThe drug nuts showed efficacy in patients who have AME type 1 (One of the most aggressive) and also showed the advance of type 2 and type 3 in all cases: Baby, boys, teenagers and adults. It is one of the most expensive drugs in existence, with a value close to 150,000 dollars per dose.

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